Skip to main content

Epidermolysis bullosa is a heterogeneous group of rare disorders characterized by mechanical fragility of epithelial tissues. Researchers around the globe are investigating new therapies to improve the quality of life of patients with little or even non-available therapeutic options so far, particularly for the more severe variants. New horizons seems could be opened in the coming years in one of the ”Worst Disease You’ve Never Heard Of ”according to DEBRA (Dystrophic Epidermolysis Bullosa Research Association of America).